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5 Years of ‘A Reluctant Contortionist’
Five years ago I started writing this blog. My first post ‘Hello World’ talked optimistically about raising awareness of EDS, and sharing my story to help others with the condition. I committed to...
View ArticleDem Bone Scans – Update 2
In 2015 I was diagnosed with osteoporosis, which is a common side effect of living with Ehlers-Danlos Syndrome. EDS causes joint pain, which makes it difficult to exercise, and inactivity over many...
View ArticleCoronavirus Lockdown
Are you enjoying the coronavirus lockdown? Surprisingly, I know quite a few people who are. For some it’s given them unexpected time off work, time with their family, and they’ve been doing activities...
View ArticleTen Years Without Food
November 2020 was the tenth anniversary of when I lost the ability to eat. It was an odd landmark in my life which I didn’t mention to anybody, but it has been on my mind so I thought I’d try to write...
View ArticleRebound Hypoglycaemia
I’m writing this article feeling dizzy, hot, and sick, plus I’m shaking, sweating and feeling a bit confused. The cause of these unpleasant but temporary symptoms is rebound hypoglycaemia. I doubt many...
View ArticleMy Summer Holiday …in Hospital
Did you enjoy the lovely hot weather we had a few weeks ago? I enjoyed the sun but unfortunately I became dehydrated, which led to a kidney infection and a couple of days in hospital. I should have...
View ArticleCOVID-19 Update
Thankfully, so far in this dreadful and tragic pandemic I haven’t contracted Covid-19, which is a big relief. However, the actions I’ve taken trying to avoid the virus have changed my life a lot. Due...
View ArticleTPN and Blood Tests
I started 2022 planning to write one blog post per month. I posted one in January, but then I got side-tracked by another EDS project, some building work done in my flat, turning 50 years old 😳😥, the...
View ArticleA blog post written by AI software
Recently on Facebook I’ve been seeing adverts for AI (artificial intelligence) software that claim the software could write blog posts for me. I’m not interested in replacing myself with software, but...
View ArticleHickman Line #3
A Hickman line is a small silicone tube that passes through the skin on your chest and enters a main vein in your neck. The aim is to give easy long term access to your vascular system for infusing...
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